I have heard it said “A wheel in motion tends to stay in motion.” When did I first hear those words of wisdom? Back when I was in the mortgage lending business? The other truism is, “You become what you focus on or think about…”I don’t even want to go there.
Dad had prostate surgery and I have Dad in a nursing home, a nice one, Marquette Manor. The problem with this nice nursing home is Marquette Manor and I are not on the same page. With 365 people in the Manor there seems to be this mindset of, this is your new home, and your last stop. We here at Marquette, are going to make it as nice as possible for you. And believe me, the Manor is nice. But, I am having problems buying in to that “Wheel in motion and this is your last stop thing.”
I was thinking we were going to rehabilitate Dad and go home. But that plan doesn’t seem to be in the Marquette Manor play book. Let me go back to a meeting I was involved in and and share the experience.
I was asked to attend a meeting with staff about three weeks after Dad arrived at the Manor. I think it was middle March perhaps. In this meeting were the heads of each department, Health Care Professionals all and all were women. They motioned for me to take a commanding position at the end of the table. I took my place at the bottom of the table. I’ll will call it the six o’ clock position. I must admit, it reminded me of when I was manager of my mortgage lending operations years ago and this felt like a Monday morning sale meeting.
In this meeting was the Activities Director, she is sitting at the twelve o’clock position at the table. She is sitting directly across the table from me. (Miss happy, Oh yes, I remember her, she walked into Dad’s room when he first arrived at Marquette and with a big cheerful, bubbly smile said, “Are you ready for a fast game of Bingo Mr. Duncan, the game starts in ten minutes.) Dad is died in the wool American Baptist, and Dad went off like a fire cracker. I could hear him mumble under his breath, “Gambling, it’s nothing but gambling!” And Dad made it very clear to her how he felt about this activity by saying it loud and with authority “NO!” So, the activities director made zero points with Dad the first day. The head nurse was sitting at the one o’ clock position of the table. The dietitian was sitting at eleven o’ clock. The lady in charge of physical therapy, she was on my left arm and the woman from finance and the social services director were scattered in between the rest. They were all looking very professional and I was sitting in my chair watching them get settled around the conference table for the meeting. I was looking at them and they were watching me out of the corner of their eye. I remember putting my hands together, folding my fingers and placing both my hands on the shiny dark wood conference table.
The room had professional lighting in the ceiling. The lights were up in the ceiling, hidden, casting stripes of light on the beautiful wall paper. Other light from above was placing spot lighting on the paintings hanging around the walls. This is a very rich looking conference room. They all were wearing their starched white full length smocks, with names tags hanging off their collars. They all had their paper work and notes in front of them and piles of paper in the center of the table that they would adjust and move as the beginning of the meeting came closer. They were ready. I am not sure what they were going to tell me but I felt they were ready.
I waited for some one to “be in charge “and start the meeting. There was this pause and I was looking at them and they were looking at me. The Social Services woman spoke up. Is there anything you would like to know Mr. Duncan?
There are times in life when your mind goes totally bland at the wrong time. This moment happen to be one of them. I looked around the table, all of their eyes were glued on me. Were they waiting for some pearls of wisdom to come forth from my mouth? I felt flush. I tried to regain my composure. I decided to fall back on my mortgage lending sales meeting experience from years ago. I lowered my head as if I was getting ready to balance my clear razor sharp thoughts with my impeccable delivery. My mind was still a blank. My experience over the years, with that many people in the room like this is, more than likely they all don’t have a clear understanding of how Dad make it to Marquette or his personal story. So I simply decided to bring everyone up to speed.
I began. On February 12, 2007 Dad was admitted to Methodist
Hospital with abdominal pain. Methodist ER discovered Dad’s prostate had enlarged and closed off the urethra tube and urine having no where to go started filling his bladder with urine. Dad’s bladder filled with urine and enlarged to about three times its normal size. The bladder finally gave way and tore a hole in the wall of his bladder. Urine then spilled into his body. He was diagnosed with a urinary tract and blood infection. While in the hospital healing from infections, they discovered Dad has a hymnal hernia and they continued to treat bed scores on his bottom and back. Lying in the hospital bed day after day, doctors discovered Dad got three blood clots in his right leg. His heart started acting up again, so they shocked it and his heart returned to a normal beat. The doctors wanted to perform a heart cauterization to get a good look at his heart before they would operate on his prostate. They found his heart to be in great shape. They liken his heart to that of a 40 year old man. Dad has arthritis in his left shoulder and left elbow. His knees are worn out and it is hard for him to stand on them for any length of time. Before he went to the hospital Dad was living alone in his own home. He was going to the bathroom and taking showers on his own. He fixed his own meals in his kitchen at home. He was able to get in and out of the Buick by him self with out any help. He was able to stand in church for a short period during the service. He was able to get in and out of his wheel chair and into a booth at his favorite restaurant and back to the car and home.
Now, the reason we are here at Marquette Manor is to give Dad time to heal the bladder and get Dad’s strength back so we can under-go prostate surgery and then go home. Dad has been in the care of Marquette about three weeks. I have noticed Dad has not gotten out of bed yet. I did notice while we were at the hospital that folks who had surgery were up and walking the halls a couple of days after surgery. You have folks have had my Dad for three weeks now. When do you think you will have him up and about?
There was silence.
I decided to continue. I have come to understand, and correct me if I am wrong, that Dad at 87 years of age is eligible for Medicare. I understand Medicare coverage will pay the bills for 100 days. I am getting a funny feeling there is no real motivation for Marquette Manor to get Dad out of bed. The motivation for Marquette Manor, it would seem, is to keep Dad around as long as possible and collect as much of the 100 day paychecks as possible. Why get him up and miss out on the full 100 days.
Please inform me as to how a hospital have their patients up and in the halls walking a day or two after an operation, but here at Marquette, three weeks into Dad’s stay, he is still lying in his bed?
This little outburst of mine, I discovered, would make people scatter when I walked into the Manor from that day forward. I would get no eye to eye contact from this crowd again. The nurse’s aids and a handful of the nurses that worked with Dad everyday would talk with me and were comfortable with me being in the room. But Dad was still in bed.
I then called the Urologist and asked for help. “Doctor, can you write an order to Marquette Manor for Dad to get out of bed a couple of times a day?
The Urologist said, “I can do better than that. I will write and order to have him out of bed for each meal. He really needs to be sitting up eating instead of lying in bed eating.” Now with an order from the doctor I discovered the nurses were not getting dad up and out of bed. I questioned the reason why?
“He is not getting up because your Dad is refusing to get up!”
“Your Dad has rights you know! Just because you want him out of bed doesn’t mean he has to do it. He can refuse to get out of bed and there is nothing you can do about it. He can refuse to eat and you can’t make him eat and we, staff, can’t make him eat. He has his rights!”
This little outburst of emotion caught me off guard. They don’t like the son coming into the Manor forcing my Dad to get up. They don’t like anyone telling them what to do. I had the good sense to keep my mouth shut at this point. I did not say anything. I just listened. But on the inside, I was exploding. The staff has this little legal rule down pat. They can justify anything with “The patient refused!” With this revelation I realize, my hands are tied. The staff has a mind set that Dad will perform like all the rest of the people at Marquette.
Carl Toug (1875-1961) once said, “What you resist, persists.” So does that still mean a wheel in motion tends to stay in motion? If
Marquette is resisting getting him out of bed and Dad is resisting going to physical therapy then there will be no change. If I buy into this program and allow this forward motion to continue, Dad will be in a bed the rest of his life.
I wrote an article a while back called Adapt, Move or Die. If we will not Adapt and change our attitude, then we must move, or die.
Should I think about a Move, and a new health care facility? Will a change in location with fresh people and attitudes make a difference? When Dad was in the hospital the first time, I was encouraged to take Dad to Westpark Rehabilitation and Health Care on the west side of town instead of Marquette. Methodist Hospital recommended I consider Westpark. The Westpark name has been brought up again by others as a possible positive place for Dad. The location of the home in the city is suspect.
My next door neighbor Mr. Hughes and I decided to take a drive last Friday night in his vintage 1970 Olds Cuttlass convertible. I told Jeff I wanted to check out a new Health Care Center for Dad. The closer we got to the Nursing home Jeff started laughing saying things like,
“Dude, this is in a real bad part of town. You’re not serious?”
I told Jeff to just hush up and pull into the parking lot and let me see if I can get inside this late at night and look around. I jumped out of Jeff’s convertible and pushed the night door bell. It took a minute or two, but lights started coming on and a nurse opened the front door. I explained to the nurse at the door I was thinking about having my Dad stay here and is it possible I could look around? She smiled and looked over my shoulder at Jeff sitting in his bright red 1970 Oldsmobile convertible. She invited me in.
The place is clean, not fancy. There is a lot of clean very shiny tile floors. I talked with the on duty nurse staff and they were very positive about the rehabilitation director, Dwight. She said they sent three patients home today. Long term care in not our focus here at Westpark. Our goal is getting people back home. I was shown just about everything. I thanked the nurses and left the building.
My first reaction was mixed. The best way I can describe my overall feeling about the two places is Marquette Manor is like a formal living room. Westpark is like a kitchen. I was quiet on the way home. What to do? I took the brochure that I had picked up and called the number on the business card of the admissions director. I was going to leave a message. She answered her cell phone and I told her what I wanted. I asked her what would be the steps to see if there was room for Dad at Westpark? She told me she would need to look at Dad’s medical records at Marquette. I told her I would call and ask the admissions guy at Marquette, to allow her access to Dad’s files. I asked her when she thought she might be paying a visit to Marquette Manor? She informed me she would be there on Monday.
SUNDAY, Day 84
Sunday, after church, I made my normal trip to Marquette. I was talking with Dad when Danny Sack walked into Dad’s room. Danny and I went to Pike High School together. Danny talked about his mother who was in a Masonic Home Health Care Facility in Franklin 30 miles south of Indianapolis. He was talking about how she had to give everything she owned to the home and in return they would take care of her for the rest of her life. Danny was encouraging Dad to do what ever he had to do to get back on his feet.
After his visit I decided to walk Danny out to the front door. On the way out I noticed the Lopez family walking toward Dad’s room. I informed the Lopez family I would be back in a few minutes. I finished my visit with Danny and his wife who was waiting outside and returned to Dad’s room. Guemalli and Merlin, Merlin’s Mom and son Eric were in the room talking and laughing with Dad. The room was getting crowded and I made the mistake of moving things on Dad’s bed side tray. He snapped at me, “Stop moving things around!”
For some reason his words today were like a knife. I took them way to personal. I know from having lived life and having made this mistake way to many times, by talking back. To simply keep my mouth shut. I know words expressed in anger can never be taken back. I picked up Dad’s laundry and told him I would talk to him later. I hurriedly left the room. The Lopez family called me on my cell phone as I was leaving in the Buick and told me they wanted to have lunch with me. We figured out a place to eat and we all talked about what I should do about Dad.
Monday Day 85
Monday morning I am driving my school bus with a full load of kids. I pass by Marquette Manor all the time on this first run. I found myself pulling on to the Marquette Manor grounds with a bus load of students. They were jumping up and down, wanting to know where I was going? I realized I was thinking about Dad and was not paying attention. After my morning bus runs I jumped into the Buick and headed for Marquette Manor. I had Dad’s laundry clean and folded. I walked into his room and his bed was made and he was no where in site. I loaded clean clothes into the clothes cabinet and headed for the physical therapy rooms downstairs. I could see him in the room from the hall. I decided to watch him from afar. He was doing arm lifts. His back was to me. He needs a hair cut. The therapist noticed me in the hall and said nothing to Dad. The therapist got up and left Dad for a few minutes and I walked into the room. I grabbed a little stool with wheels, sat down and wheeled my self up to him.
“I was just thinking about you!” Dad said.
“That’s because I was standing in the hall behind you sending good vibrations your way.”
Dad said, “Look, I would like to say I am sorry if I snapped at you yesterday
I sat there and didn’t know what to say. I placed my hand on his arm.
“Dad, you get upset from time to time, and I guess I have a little you in me. But remember one thing, even if we fight and yell at each other, you must always remember, I love you.”
He smiled and his face relaxed. I held up my hand and he gave me a very gentle high five.
I left Marquette Manor and headed for Westpark. I drove to the 1300 block of Tibbs Ave and into the parking lot. All the parking spaces were full. I found a space on the side. I walked to the front door.
I asked the receptionist if I could meet with the dietitian and the physical therapist. Dwight, physical therapy came out from the back and we had about a 20 minute talk in the dining room before he had to go to a meeting. Dwight might be pushing age 50. He has been a Westpark for 13 years. He told me he would do what he could to get Dad back home. But… the owner of Westpark, has the final word if Dad will come to Westpark. I talked to the dietitian and she is willing to do what ever we need to do to give Dad hot soft food so he can start putting weight back on. She has been at Westpark for 18 years. I left Westpark with mixed emotions again. People will say anything, won’t they? They seem like they enjoy their jobs. Will Westpark be more to my Dads liking? Should I make this change? Trying to decide where Dad will feel comfortable. It’s not easy.